What’s in My Luggage?

Having multiple sclerosis (MS) means I need to be prepared for anything, especially when I’m traveling. Depending on the type of travel, I rely on different accessories for support.

Whether I’m soaking up the sun on a beach vacation or exploring the sights of a bustling city, being well-prepared helps me handle my MS with greater independence, comfort, and peace of mind.

I’ve been managing my condition for 20 years while jet-setting as a part-time digital nomad, so I’ve learned a few things about planning and preparation for travel with MS.

Trust me, symptom flare-ups and fierce spells of fatigue can happen anywhere, even on vacation. By proactively preparing for potential MS-related scenarios like these, you, too, can make the most of your precious time at your next dreamy destination.

Here’s a glimpse into the travel essentials that help ensure a smooth journey every time.

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Water shoes

For trips that highlight water activities, like tropical getaways or swimming excursions, I always pack water shoes. These are usually made of neoprene (the same material as wetsuits), and their grippy rubber soles help protect my feet from cuts and scratches. You never know when you’re going to find yourself at a hotel pool or on a rocky beach.

Supportive shoes and a walking stick

If travel adventures will involve a lot of walking, such as strolling through a city or trekking in nature, a cane and footwear with supportive insoles are indispensable. These tools help me maintain stability and reduce my fatigue.

Important documents

It’s crucial to have the right paperwork on hand to navigate airport security and defend against unforeseen issues. I always bring a doctor’s note explaining my need for my injectable medications and my temperature-controlled meds. I also carry documentation for my insurance plans, especially travel insurance, to ensure smooth travels.

(Seriously, get the travel insurance. It can save you from major, unplanned medical expenses in case of emergencies and expenses related to lost gear, trip cancellations, and delays.)

Extra meds

In case of unexpected travel delays or changes, bring extra medication, like your disease-modifying therapy, prednisone, and pain relievers. Coordinate with your doctor and insurance provider to obtain a sufficient supply for your trip. Be sure to carry your medication in your carry-on and not in checked luggage, which sometimes gets lost.

An extra backpack

After I’ve dropped off my luggage in my room and I’m ready to venture out around my destination, I usually want an extra bag to carry my daily essentials while I’m on the go. I like to bring a cute, lightweight backpack purse that can hold a collapsible cane, a change of undies for “oopsy” moments of incontinence, those pain-relief meds I packed, my wallet, and whatever else I think I’ll need.

Recovery supplies

After a long day of sightseeing, I often return to my lodging feeling exhausted. I’ve learned to pack supplies for a good evening routine to recharge my energy levels so I wake up feeling refreshed the next day.

I bring resistance bands to help me stretch, a flexible, reusable ice pack like ReleafPack to cool my internal body temperature and ease inflammation, and an eye mask and ear plugs to protect sacred sleep.

The takeaway

Before I head off to my next destination, it always helps to think through all the different scenarios I might experience. That can help inform me what specialty items I may need to pack and help me enjoy the trip without any hiccups.